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Our Story: My Village and Me

Our Story: My Village and Me

Aug 27, 2019 | News, Press Releases

I was born with Cystic Fibrosis.  It is a hereditary disease that affects the lungs and digestive system and can literally take your breath away.  It attacked my lungs when I was just nine-years old. Today, I’m in my thirties.  I have an undergraduate degree and am...
Pediatric Liver Transplants: Get the facts!

Pediatric Liver Transplants: Get the facts!

Aug 15, 2019 | News, Press Releases

What is OPTN? According to their website, “The Organ Procurement and Transplantation Network (OPTN) is a unique public-private partnership that links all professionals involved in the U.S. donation and transplantation system. Also crucial to the system are individuals...
Let Your Voice Be Heard! OPTN is Seeking Feedback

Let Your Voice Be Heard! OPTN is Seeking Feedback

Jul 30, 2019 | News, Press Releases

This information has been provided by OPTN and is presented by NFT as a public service. The OPTN is seeking feedback on initiatives impacting organ donation and transplantation in the U.S. The public comment period for the proposals below will be open from August 2,...
I Was in the Prime of My Life When I Almost Died

I Was in the Prime of My Life When I Almost Died

May 22, 2019 | News, Press Releases

I was in the prime of my life when I almost died. I had no medical problems before all of this. I didn’t know that it was going to happen. I am currently an Emergency Medicine physician-in-training. I was going to be done with training this year, and then I was going...
Pediatric Transplant:  A Father’s Perspective

Pediatric Transplant:  A Father’s Perspective

Apr 22, 2019 | News, Press Releases

By:  Joseph P. Hillenburg There are currently almost 2,000 children on the organ transplant waiting list in the United States, with many more children on waiting lists in other countries. In 2011, my son, Ben, was one of those children. His life started just like...